Well my 3 month reprieve off of my cancer meds is over :( I had an appointment with Dr Talpaz and he has put me back on Tasigna (the meds I have been on for almost 6 years now). After 2 cardiologists and one vascular surgeon assured me "I don't think your artery blockages are related to Tasigna" but ...... we really don't know as these drugs have only been around for a relatively short time (less then 10 years) . Somehow this isn't really assuring to me.
On my 3 month "drug holiday" it took me a month to really notice any difference. Then the next 2 months I still had my leg pain so I think it is caused by something else (oh joy). I did have more energy and when I pushed myself to far I could rebound much sooner. That part of the holiday was nice. However I am still waiting for my bloodwork results that will show if my PCRU status has changed. Dr Talpaz reassured me if my numbers took a dive that going back on Tasigna will bring them right back to where they should be. Once again, this is only a guess. There are only a few people that are in trials that have come off meds and are doing fine. I do know 3-4 and have talked with one who has been off meds for several years and is doing fine with no sign of relapse. This is hopeful to me but still makes me uneasy. I like to know what is going on and what is going to happen. This lets take you off your meds for a while and see what happens, is just bugging the crap out of me. Even though my meds make me a lot more tired, and needing of more rest, dry skin, falling out hair, etc. I kind of liked knowing what was going on and knowing what to expect. Being in a place where I am not sure of what is going on makes me nervous, very nervous.
On another note it seems that the 2 blockages I have aren't going to have anything done to them until "a problem" shows up. I am not sure if I agree with this or not. I do like the fact that I don't need another surgery but then I don't like the idea of the renal blockage causing problems to my kidneys. I guess only time will tell. So it is back to the waiting game, blood tests, mra's etc. I also have been revered to a spine specialist to see if my leg pain is related to spinal stenosis or something else spine related. That isn't until November so..... more waiting :(
More to come: when I get the bloodwork results from last week. Just kind of rambling today so if it doesn't make sense its me not you... LOL
